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I'm Back!!! Transplant Update!!!!

Hey Guys!!!

This is Eva. Yep. Your main girl. From the mouth. Well....what to say. It has been 12 days since my transplant and I am feeling great!!

Thank you for all you wishes and thoughts and prayers and hopes and dreams. They worked because I've pulled through and feel amazing.

Where to start. This will just be a short message but I wanted to let you all know how its going. They're still working at balancing my anti-rejection drugs as well as the plethora of other drugs I am now on. If i thought I had to take pills before it is nothing compared what I will be taking from now on. SOOOOOO MANY! I dont mind though because I CAN BREATHE!!

I know they say when you wake up and take that first big breathe.....well that is bullshit! When I woke up my only thoughts were get this fucking tube out of my mouth and stay the hell away from me I feel like shit! ....thankfully it has gotten a lot better. Every single day more tubes and monitering systems get taken off me and now I am pretty much wireless. I just have the old port accessed although we're switching it tomorrow for a PICC line so that the nurses can take blood from there rather than have to poke me 5 x a day.

I still look a little bruised and battered from all the tubes (oh and also because it turns out I AM a FIGHTER and they had to restrain me and tie down my wrists and even my ankles because everytime I woke up I'd fight to take out the ventilator).

As for now. I'm not on oxygen, I'm still working to get all the shit out of my lungs because I got really sick and they had to re-intubate me for awhile there and my lungs filled fluid so I'm still coughing shit up. I'm also learning all about my new medications and the new regime I'll have to follow once I get home.

Guys.....I GET TO GO HOME......FORREVER!!! do you know what means I am so so so excited about it. I'm even eating hospital food now because I now it's just temorary. Oh and another thing...alll those other problems I was haviing has just stopped. No more nausea, vomiting, itchiness, dizzyness. nothing.

So seriously I just cant get over the fact that I can make plans for the future. I have a FUTURE!!!! Guys I am so brillliantly happy these days I cant even explain. I love you all and am so thankful for everything.

"hello!"
Photo Sharing and Video Hosting at Photobucket

oh look its the camera crew filming me write this
Photo Sharing and Video Hosting at Photobucket

they dont like being photo-ed
Photo Sharing and Video Hosting at Photobucket

Photo Sharing and Video Hosting at Photobucket

did my nails
Photo Sharing and Video Hosting at Photobucket

theres my mum and namisha...you can see the lovely gowns everyone has to wear to enter my room. fun!
Photo Sharing and Video Hosting at Photobucket

Photo Sharing and Video Hosting at Photobucket

bye for now!
Photo Sharing and Video Hosting at Photobucket


Signing out...



Eva (with new lungs)!!!!


p.s.- i havnt had time to read my friends list so if anything really important happened can someone let me know? thanks!
Creative Commons License
This work is licensed under a Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 Unported License.



© Eva Dien Brine Markvoort 2006-2010

Comments

( 55 comments — Leave a comment )
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(Anonymous)
Nov. 6th, 2007 04:52 am (UTC)
Happy to see you post, so grateful to see you with out all of those tubes and such a beautiful smile. I knew cf kitty and keep up with you and others in the cf community. Im an xray tech and I have a had so many co-workers and friends that have been praying for you. Enjoy your new breaths. Susan florida
65redroses
Nov. 6th, 2007 07:20 am (UTC)
thank you! i will enjoy them!
wunderkin72
Nov. 6th, 2007 05:09 am (UTC)
I'm so glad that you're doing so well! Keep getting better, and let us know how being home ALL THE TIME is!!!
<3&hugs
-L
65redroses
Nov. 6th, 2007 07:21 am (UTC)
i will as soon as i get there.....still a couple of weeks in thhis joint left.
(no subject) - 65redroses - Nov. 6th, 2007 07:21 am (UTC) - Expand
daydee
Nov. 6th, 2007 05:22 am (UTC)
AHHH AHHH AHHH I AM SCREAMING AND SO HAPPY FOR YOU!

MY EVA ROCKS!!!!

I think I'll have the same reaction to the vent as you... my main fear of a transplant.

AHHHHHHHHH

(My goal is for you to hear me down here in Eugene)

LOVES!!!!
daydee
Nov. 6th, 2007 05:27 am (UTC)
AHHHHHHH I'm still sceaming (but on the inside because I think the boys may kill me)

(no subject) - 65redroses - Nov. 6th, 2007 07:19 am (UTC) - Expand
(no subject) - daydee - Nov. 6th, 2007 07:39 am (UTC) - Expand
corduroyskirt
Nov. 6th, 2007 05:32 am (UTC)
yaaaay! great to see you.
65redroses
Nov. 6th, 2007 07:22 am (UTC)
thanks! i cant wait to get caught up on your life....hair still pink? are you still at amys?
(no subject) - corduroyskirt - Nov. 6th, 2007 04:28 pm (UTC) - Expand
nurvuslee
Nov. 6th, 2007 05:44 am (UTC)
Oh, gosh, I've got tears in my eyes reading this and looking at your pictures. Wow, I'll never take my ability to breathe for granted. I'm so happy that you're doing well, Eva, and that you're sharing your experience with the crew is just wonderful.

{{{Eva & family}}}
65redroses
Nov. 6th, 2007 07:23 am (UTC)
thank you from the bottom of my heart!
finding_her
Nov. 6th, 2007 06:46 am (UTC)
You, my dear, LOOK BRILLIANT! Look at the healthy glow that oxygen can give a girl!

I love the pictures of the crew, btw. It looks like you've got some pictures on the wall behind you, too!
65redroses
Nov. 6th, 2007 07:26 am (UTC)
of course i do! i dont travel any where without all my photos......as you guys might have noticed i'm a bit of a camera whore....

totally on a different note......i siad i havnt read my flist and i havnt but i couldnt help but notice you writing something about your friend mike who had his transplant a little while ago..what exactly happened i dont want to guess at the wrong thing here. i love you jenn just so you know.
(no subject) - finding_her - Nov. 6th, 2007 06:26 pm (UTC) - Expand
(Deleted comment)
65redroses
Nov. 6th, 2007 07:26 am (UTC)
hee hee hee hee thanks!
ramerk
Nov. 6th, 2007 07:11 am (UTC)
That is totally awesome! You are looking good! On the fast track. I went through this a few years ago, so if you have any questions, send them my way. :)
65redroses
Nov. 6th, 2007 07:30 am (UTC)
thanks i will! actually i do have a question for you. tomorrow they want to unhook my port. not take it out mind just de-access it and give me a PICC so they can give meds and take blood as much as needed.....now i thought thats why i had the port to begin with but my port is very pld and little and they can only put stuff in and not take blood so i understand why they're doing this. but then shouldnt they just get rid of the port alltogether? i mean i've had transplant so i wont neeed it right?? what do you think?
(no subject) - (Anonymous) - Nov. 6th, 2007 07:33 am (UTC) - Expand
OOPS - ramerk - Nov. 6th, 2007 07:40 am (UTC) - Expand
lotus82
Nov. 6th, 2007 07:27 am (UTC)
Oh my God, Eva =) You've no idea how happy John and I are for you =) You look fabulous!!! Your whole face has lit up!
65redroses
Nov. 6th, 2007 07:30 am (UTC)
eeee!!!! i know!! isnt it GREAT!?!?
crustycupcake
Nov. 6th, 2007 08:21 am (UTC)
CONGRATULATIONS EVA! You'll be off having cupcakes and visiting the steam clock again in no time! I'm so happy for you!
65redroses
Nov. 8th, 2007 01:26 am (UTC)
thanks! I cant wait to be off having vancouver adventures as well too!
kat_28
Nov. 6th, 2007 09:41 am (UTC)
Woohoo! I am sooooo happy for you, Eva! You look so happy and healthy in those photos, it's just fantastic! You're going to have a fabulous future and experience and enjoy all those things you deserve to, all the things you've been dreaming of being able to do for so long!
I am so gratful to the donor and their family for giving you this new life, as you deserve it so much :)

Keep smiling girl! :D
Love always, Kat xxx
65redroses
Nov. 8th, 2007 01:28 am (UTC)
awww thanks sweetie, your kind words mean so much to me. love ya to bits!
ladymysla
Nov. 6th, 2007 10:01 am (UTC)
I've been hoping so hard for you, and im so glad you're doing ok! Im so excited to hear all about it.. i've got curiousity like nobodies business!

Im so glad you're doing better, and I cant wait til we get to 'watch' you resume your life. Go Eva!
65redroses
Nov. 6th, 2007 10:13 pm (UTC)
if you have any questions dont hesitate to ask, i'd be glad to help you out. loves!
orwellian_trash
Nov. 6th, 2007 11:20 am (UTC)
This is wonderful :D
65redroses
Nov. 8th, 2007 01:29 am (UTC)
yes! it is!
swimchica623
Nov. 6th, 2007 01:45 pm (UTC)
eeeee!!!!!!! For once I'm speechless (wordless?) I can't even BEGIN to express how absolutely happy I am for you!!!!!! There are no words....your pictures say it all. Even your writing is more alive....so vibrant and just wonderful! I'm soooo happy for you and your family and I am looking forward to reading more bright, happy posts from the brilliant, smiling Eva. :-)

Well, you asked all of us what's going on in our lives too but we are all so overwhelmed by your super-fantastic-wonderful post that no one has said anything! So I'll be the first if it doesn't make me seem too self centered (but hey, you ASKED, and you want some news when you can only see a few people, right?) And hey, this is performing-art news. I got picked to play bass flute at one student concert in 2 weeks and a flute mozart concerto at another in 5 weeks. Before you know it, we will be reading all about your wonderful theater news!!!
65redroses
Nov. 6th, 2007 10:15 pm (UTC)
awesome!!! that is great news andd i DID ask so thanks for letting me know. i always love reading your updates. hugs!
(no subject) - 65redroses - Nov. 8th, 2007 01:30 am (UTC) - Expand
paulshrink
Nov. 6th, 2007 01:46 pm (UTC)
CONGRATULATIONS! it is thrilling to hear that you are breathing again, with new lungs, and rapidly recovering from all the surgical hurts!
wander_lost
Nov. 6th, 2007 01:58 pm (UTC)
alright girlie- I have had a little package sitting here since you posted those photos before your tx when you were feeling pretty low - so now, my dear, I need an address where to send it. it is nothing big, but I think you're amazing and wanted to send you a get well package (now it is a new-lease-on-life package)!

I am so glad you're feeling so well!
65redroses
Nov. 6th, 2007 10:16 pm (UTC)
send me your email to jaki232 @ yahoo.com and i'll send you my home addy! ohhhhh snail mail is the coolest thing ever.....and coming from you i just cant wait! tee hee!
la_belle_mer
Nov. 6th, 2007 02:40 pm (UTC)
Go Eva!!! Wow - you look awesome! So happy to hear from you and so grateful everything worked out so wonderfully. Looking forward to hearing about where your new lungs will take you!

Love,

Kate
65redroses
Nov. 8th, 2007 01:31 am (UTC)
thank you!
logicalargument
Nov. 6th, 2007 02:55 pm (UTC)
It's so good to see such good news! Congratulations!
hoodedfreak
Nov. 6th, 2007 03:07 pm (UTC)
I commented in my own journal back at you, but I go again:

LOVE LOVE LOVE LOVE LOVE LOVE LOVE LOVE LOVE LOVE

Breathing rules. Be good Miss Eva.
blueskitten
Nov. 6th, 2007 03:35 pm (UTC)
YAY YAY YAY YAY! You just made my morning... what perfect news to wake up to. You look so happy and healthy and your face has so much color in it. Oh, to know that you'll be OUT OF THERE soon!
smell_the_smoke
Nov. 6th, 2007 04:10 pm (UTC)
you are so beautiful. i do not know you, you do not know me, but i am so happy for you.
samhain66
Nov. 6th, 2007 04:51 pm (UTC)
That is wonderful, I am so happy to hear that!!

good to see you smiling!!
cupcake4488
Nov. 6th, 2007 05:19 pm (UTC)
SOrry I havernt been commenting I've been dealing with a ton of shit on my side of the world but I want you to know you are truely amazing and I'm soo happy things are going so well for you. I cant imagine how nice it is to be able to breathe and laugh without coughing up a lung. You serioulsy inspire me to keep on fighting.
falling_freely
Nov. 6th, 2007 09:18 pm (UTC)
YAY!!!
Eva-

I am so fucking unbelievably happy for you. I am grinning right now, after looking at those beautiful photos of you grinning from ear to ear. You look amazing. I told so many people about my amazing friend who was getting new lungs, and then one day my friend brought a picture of you to class- in the Times Colonist- and he said "This must be your friend who you have been talking about," and then a bunch of people told me they saw you on the tv news and that they had been thinking it was you!!! You are inspiring people all over the place :)
I am coming to Vancouver this weekend (remembrance day weekend) and if you are up for it, I would love to visit. If you are not quite ready, no worries. Let me know :) I can't wait to give you the biggest hug - you are such an amazing fighter!!! Also, amazing that all those horrible symptoms just went away. Amazing and fabulous.

Love you.
Christie
jopjapsusanna
Nov. 7th, 2007 04:43 am (UTC)
It's great to hear from YOU! I'm so glad that you're feeling much better, and I hope the PICC placement goes okay. I've had my share of bad placements and...you don't need anything else to add to everything else you've dealt with. My happiest thoughts are still with you, and when I am admitted tomorrow, I will use your strength and spirit in getting through your transplant as inspiration for getting through this slight glitch in my semester. It won't be anything compared to what you've had to endure. And again, so happy to hear you're well! I love seeing your pictures with you smiling. It makes me smile.


Lucy
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